opening the healthcare data landscape

[ju-liem]

Project Lead: @ju-liem

Mentor:@chadsansing

Welcome to OL6, Cohort E! This issue will be used to track your project and progress during the program. Please use this checklist over the next few weeks as you start Open Leadership Training 🎉.

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Before Week 1 (Sept 13): Your first mentorship call

• Complete the OLF self-assessment (online, printable). If you're a group, each teammate should complete this assessment individually. This is here to help you set your own personal goals during the program. No need to share your results, but be ready to share your thoughts with your mentor.
• Make sure you know when and how you'll be meeting with your mentor.

Before Week 2 (Sept 20): First Cohort Call (Open by Design)

• Complete Assignment 'Write Your Vision or Mission Statement'. Leave a comment on this issue with your draft vision statement & be ready to share this on the call.
• Watch 'Mozilla & Working Open'.
• Check the Syllabus for notes and connection info for all the cohort calls.

Before Week 3 (Sept 27): Mentorship call

• Look up two other projects and comment on their issues with feedback on their vision statement.
• Complete your Open Canvas (instructions, canvas). Comment on this issue with a link to your canvas.
• Start your Roadmap. Comment on this issue with your draft Roadmap.

Before Week 4 (Oct 4): Cohort Call (Build for Understanding)

• Look up two other projects and comment on their issues with feedback on their open canvas.
• Pick an open license for the work you're doing during the program.
• Use your canvas to start writing a README, or landing page, for your project. Link to your README in a comment on this issue.

This issue is here to help you keep track of work during the first month of the program. Please refer to the OL6 Syllabus for more detailed weekly notes and assignments past week 4.

[ju-liem]

draft vision statement
I'm working with the Centers for Medicare and Medicaid Services to design and build APIs so that healthcare providers and others in the health tech space can access the treasure trove of data at CMS to deliver higher quality services to patients in their care. I'm working open because I believe that as the largest payer in the US healthcare system, CMS has the ability to move the entire industry toward standard data format and sharing practices. Helping nudge them toward more open and collaborative working practices will help pave a path toward more free-flowing data and improving healthcare standards and results across all patient populations.

[chadsansing]

Hi, @ju-liem. Very clear vision statement. Is there an example of a specific health-care improvement an API might allow that you might provide as an example here?

Also, happy to take a look at your open canvas and road map if you can link them here.

[ju-liem]

Open Canvas: https://docs.google.com/presentation/d/1_NO8LcoSYo25R4WoztfxED-RlUWUp9Ff2WgYD3-PkbM/edit?usp=sharing

[chadsansing]

@ju-liem, I really appreciate the clarity of the problem statement. I think this canvas also gives me a very specific idea of your audience. I wonder if contributors might include those people in your agency/in participating agencies that you would coach and guide. Then, you might consider which channels they need to do the work, but also participate in it in an open way. What are initial, low-risk ways to ask questions and share experiences? Where do contributors feel safest discussing or debating more open approaches to building the project/API or the alliance of stakeholders willing to test it?

[fraguada]

@ju-liem the canvas gives someone like me who is not familiar with health data standards a very clear view of the problems. I do have some experience with standards in other fields like Architecture, Engineering, and Construction (AEC). One key contributor channel for AEC are conferences and working groups (for example Building Smart that deals with the IFC standard which is used for building model interoperability between software). If there are conferences and trade shows for hospitality gifts, there are probably a good deal of conferences for health care. I am sure you know more about those than I. Perhaps there are opportunities for collaborating with some of these conferences to have some breakout sessions related to your project?

[ericboucher]

@ju-liem we should chat! My team just worked on open-sourcing the code for QPP-C2Q scoring.

[ju-liem]

@ericboucher Yes, please!